Champions of hope

2018
David Barlow Genetic Disorders UK

For commitment to the UK genetic disorders community

2017
Nicole Boice
Global Genes

For international commitment to the UK genetic disorders community

2017
Karen Butcher
Charcot Marie Tooth Disease UK

For lifetime dedication to the UK genetic disorders community

2017
Sarah Clark
Cleidocranial Family Support Group

For the courage to start a new organisation within the UK genetic disorders community

2017
Libby Clegguk

For achievement within the UK genetic disorders community

2018
Geoff Creamer
CGD Society

For commitment to the UK genetic disorders community

2017
Alan Finglas
MSD Action Foundation

For the courage to start a new organisation within the UK genetic disorders community

2018
Oliver Gardiner
XLH UK

For the courage to start a new organisation within the UK genetic disorders community

2018
Andrew Gibson Krabbe UK

For the courage to start a new organisation within the UK genetic disorders community

2017
Claire Hennessey
Max Appeal

For lifetime dedication to the UK genetic disorders community

2018
Carlos Heras-PalouTTR Amyloidosis Patient Association UK

For the courage to start a new organisation within the UK genetic disorders community

2017
Wendy Horrobin
Norrie Disease Association UK

For the courage to start a new organisation within the UK genetic disorders community.

Wendy has a son affected by Norrie disease and is in the process of establishing the Norrie Disease Foundation to promote vital new research and to offer support to families by strengthening the Norrie network – sharing resources, contacts and connecting families.