Programme overview

Why a partnership network?

It is estimated that there are between 6,000 to 8,000 genetic disorders. While individually, each of these disorders is rare, collectively they affect more than 2.4 million people in the UK including more than half a million children.

The aim of the UK Genetic Disorders Partnership Network is to create a forum for all those organisations in the UK that support and care for those affected by a genetic disorder to enable the genetic community as a whole to:

  • increase the profile of genetic disorders among the general public so that the role of genes and the impact of a change in a gene on the life of a child or adult can be better understood
  • raise more funds to support those affected by a genetic disorder
  • collaborate more closely and share best practice and learning

What are the advantages of becoming a member of the UK Genetic Disorders Partnership Network?

Members of the UK Genetic Disorders Partnership Network will be able to:

  • apply for a grant from the annual GDUK/Jeans for Genes Day grant programme
  • register for priority booking to attend the annual UK Genetic Disorders Leadership Symposium (for genetic disorder charities and patient groups only)

How do I become a member of the UK Genetic Disorders Partnership Network?

To become a member, please visit our registration page.

You will be asked to accept the terms and conditions of the Partnership Network. We have tried to make these as collaborative and simple as possible.

Once you register your details, you will be asked to send us your organisation’s logo so that we can add it to a list of members and link to your website.

Wear Jeans to change lives

Join us for Jeans for Genes Day 16th -20th September