for Charities and Patient Groups

UK GEnetic Disorders Partnership Network


The UK Genetic Disorders Partnership Network is an exciting new collaboration between organisations working to improve the lives of those affected by genetic conditions. Membership is open to genetic disorder charities and patient groups, and to special schools, hospitals, hospices and service organisations who support and care for those affected by a genetic disorder.

Grant Programme

Funds raised on Jeans for Genes Day provide grants to disorder-specific charities to fund inspiring projects and support services for children affected by a genetic disorder.

Leadership Symposium

The UK Genetic Disorders Leadership Symposium is a two-day event in London that offers the leaders of charities and patient groups the opportunity to hear from experts in a wide range of fields related to genetics and the care of individuals and families with genetic disorders.

List of UK GENETIC DISORDER CHARITIES AND PATIENT GROUPS

We are in the process of establishing a list of all the genetic disorders charities and patient groups in the UK. If you would like your organisation to be added to this list, please contact us.

Champions of Hope

Our Chamions of Hope awards recognise individuals who have made a significant contribution to the UK genetic disorders community.