Skye’s story

Meet Skye. Skye has Rett syndrome, a condition caused by a faulty gene that’s robbing her of her ability to walk, feed herself or even speak. By pulling on your jeans on Jeans for Genes Day, you could fund a special machine that will enable Skye to communicate with her eyes.

Just £5,000 will buy a second Tobii Eye Gaze machine for this special school to use with Skye and other pupils living with Rett syndrome, meaning they will no longer have to schedule time for the girls to communicate.

Genetic Disorders UK would like to say a huge thank you to Skye, her family and Henry Tyndale School who provide support to children, and their families, living with this genetic disorder.