Please call 020 7199 3300 if you would like to speak to any of us.
Caroline has an MBA from INSEAD and worked in international brand development before her first child was diagnosed with a genetic disorder. She joined the Jeans for Genes Day campaign in 2007 and founded Genetic Disorders UK in 2011. Caroline organises the annual UK Genetic Disorders Leadership Symposium for charities and patient groups, and is a passionate advocate for affected families.
Head of Operations
Doron oversees the operations and finances of Genetic Disorders UK, the Jeans for Genes Day campaign and Primary Immunodeficiency UK, and leads the development of the website, database and fulfilment infrastructure. He also provides operational support to the Chronic Granulomatous Disorder Society.
Genetic Disorders UK
Danielle manages the UK Genetic Disorders Partnership Network and helps coordinate the annual grant programme. She is also the key contact for grant charities regarding the provision of case studies for the Jeans for Genes Day PR campaign. Her husband has the genetic disorder adrenomyeloneuropathy and she is a trustee of The Sandcastle Trust.
Genetic Disorders UK
Sam Carlisle is director of Cause Communications and a national newspaper journalist with 20 years experience. Sam has two children one of whom, Elvi, has the genetic disorder RCDP. Sam is a passionate advocate for children with disabilities and is a member of our mum’s panel.
Jeans for Genes Day
Marketing & Communications Director
Laura oversees all of the marketing and communications for Jeans for Genes Day. She is also the key contact for all corporate partnerships and press.
Jeans for Genes Day Marketing & Communications Manager
Lina is responsible for organising the public relations activities around Jeans for Genes Day. She also manages our T-shirt design competition and the sale of merchandise.
Primary Immunodeficiency UK Director
Susan is director of PID UK, set up as part of Genetic Disorders UK to support families affected by primary immunodeficiencies. Susan is also the head of specialist services and research for the CGD Society. Susan has a degree in biochemistry and a PhD. She graduated as a EUPATI Fellow in 2017 and is a patient advocate on the National Plasma Product Expert Advisory Group, NHS Scotland, the NHS England CRG for Immunology and Allergy.
Emily is a GCRB Registered Genetic Counsellor. She has an MSc. in Genetic Counselling and BSc. in Genetics from Manchester and Newcastle Universities. She worked in NHS genetic services before moving to the voluntary sector in 2014.