Please call 020 7199 3300 if you would like to speak to any of us.
Interim Chief Executive
Lisa joined the team in October 2019 with a brief to innovate, to develop the impact framework and to diversify the charity’s income streams. She has held CEO and Interim CEO positions at Bright Ideas Trust, The Childhood Trust, Explore and Greenhouse Sports (Interim Director of Development) and she is a trustee at Hampshire & Isle of Wight Air Ambulance. Lisa is a member of the Institute of Fundraising, has led a business support membership organisation and is passionate about delivering support to disadvantaged children. She was awarded an MBE in 2015 for services to young people and small businesses.
Head of Operations
Doron oversees the operations and finances of Genetic Disorders UK, the Jeans for Genes Day campaign and Primary Immunodeficiency UK, and leads the development of the website, database and fulfilment infrastructure. He also provides operational support to the Chronic Granulomatous Disorder Society.
Genetic Disorders UK
Danielle manages the UK Genetic Disorders Partnership Network and helps coordinate the annual grant programme. She is also the key contact for grant charities regarding the provision of case studies for the Jeans for Genes Day PR campaign. Her husband has the genetic disorder adrenomyeloneuropathy and she is a trustee of The Sandcastle Trust.
Primary Immunodeficiency UK Director
Susan is director of PID UK, set up as part of Genetic Disorders UK to support families affected by primary immunodeficiencies. Susan is also the head of specialist services and research for the CGD Society. Susan has a degree in biochemistry and a PhD. She graduated as a EUPATI Fellow in 2017 and is a patient advocate on the National Plasma Product Expert Advisory Group, NHS Scotland, the NHS England CRG for Immunology and Allergy.
Emily is a GCRB Registered Genetic Counsellor. She has an MSc. in Genetic Counselling and BSc. in Genetics from Manchester and Newcastle Universities. She worked in NHS genetic services before moving to the voluntary sector in 2014.