Our telephone and email helpline service is for people with a genetic disorder, their relatives and anyone who needs to know more about genetic disorders and how to cope with the difficulties they can present.
Our helpline is an expanding service and is the only free helpline in the UK for all genetic disorders. We are a small team and may not be able to respond to all calls immediately. You can leave a voicemail or send an email at any time and we will aim to respond to all enquiries within three working days.
Your enquiry will be treated in the strictest confidence.
How you can contact us
When leaving us a voice message or sending an email please ensure you include your name, telephone number and a brief outline of your main question or concern. This will enable our team to more effectively respond to your enquiry.
Please note our service cannot provide diagnosis, genetic testing or therapeutic psychological counselling.