Privacy policy

In this policy “Genetic Disorders UK” means the registered charity “Genetic Disorders UK”.

Genetic Disorders UK is committed to protecting the privacy of all visitors to the Genetic Disorders UK website and the confidentiality of the personal information which our users provide to us. 

This policy tells you how we collect and use the information you give us. 
1. Personal Information
2. Our Use of Personal Information
3. Acknowledgement
4. Updating, Correcting and Deleting Personal Information
5. Cookies
6. Privacy Policy for Minors
7. Security
8. Email
9. Sensitive Information
10. Links
11. Our Contact Details

1. Personal Information

In some areas of our website, we ask you to provide personal information that will enable us to enhance your site visit or contact you after your visit.  Examples of your personal information include your name, postal address, phone number and email address.

We may ask for information in a number of different circumstances, e.g. when you subscribe to our newsletters, provide feedback to us, complete a registration form or any online survey we may publish from time to time.

2. Our Use of Personal Information

The processing of your information by Genetic Disorders UK and (if applicable) its service providers will be regulated by UK data protection law.

We use the information we collect about you to help us understand more about how our site is used and to enable us to send you communications about Genetic Disorders UK, Jeans for Genes Day, Jeans for Genes Grant Programme, Genes Are Us and affiliated charities that may be of interest to you, either electronically or otherwise.

We may use the contact details we collect to ask for your feedback, keep you informed of news and developments which may be of interest to you and to notify you occasionally about important changes or developments to the website or our work.

We may also use your personal information to customise and improve this website.

3. Acknowledgement

This policy may be subject to updates and changes. Please revisit it each time you consider giving personal information. By using this website you acknowledge that you have read the terms of this privacy policy and that you consent to the collection of information from you and use of it as described in this policy.

4. Updating, Correcting and Deleting Personal Information

We may add to the details which you give us further information that we obtain from third parties. You are entitled to see the information we hold about you.  If you would like us to correct or update your personal details, or delete any inaccuracies, please email or write to us at the address indicated at section 11 (Our Contact Details).

We are entitled by law to charge you a fee of £10 to meet our costs in providing you with details of the information we hold about you.

5. Cookies

A cookie is a small piece of information sent by a web server to a web browser, which enables the server to collect information from the browser. Find out more about the use of cookies at www.allaboutcookies.org

We use cookies to identify you when you visit this website and to keep track of your browsing patterns.  By showing how and when visitors use our site, cookies help us to identify which areas are popular and which are not, and to understand and improve the Genetic Disorders UK website.

Most browsers allow you to turn off cookies. If you want to know how to do this please look at the help menu on your browser. However, switching off cookies is likely to restrict your use of our website. 

For further details on our cookie policy and the cookies we store please refer to our our cookie policy

6. Privacy Policy for Minors

The protection of children is very important to us.  If you are under 18, please do not provide us with any personal information.

Children should always ask a parent or guardian for permission before sending personal information to anyone online.

7. Security

We place great importance on the security of your personal information and we always try to take appropriate precautions to protect it.  Unfortunately however, no data transmission over the internet can be guaranteed to be 100% secure. As a result, while we strive to protect our supporters' and users' personal information, we cannot guarantee the security of any information which you disclose to us online and you must understand that you do so at your own risk. We cannot be responsible for the theft, destruction, or inadvertent disclosure of your personal information.

8. Email

We cannot guarantee the confidentiality of any messages transmitted between you and us via email as these are potentially accessible by the public.  We will not be liable to you or anyone else for any loss in connection with any email message sent by you to us or by us to you.

9. Sensitive Information

When using or subscribing to our services, you may choose to provide us with information which is defined as sensitive personal information in the Data Protection Act 1998. Examples of sensitive information include details of your ethnicity or state of health. As with all of the personal information which you provide to us, we shall use and store this information carefully in accordance with this privacy policy.

10. Links

This website may contain links to other websites which are outside our control and are not covered by this privacy policy. If you access other sites using links provided on this site, the operators of these sites may collect information from you which will be used by them in accordance with their privacy policy, which will differ from ours. The operators of these sites may send their own cookies to users, collect data or solicit personal information. You should read the privacy policy of any site on which you are sharing personal information.

11. Our Contact Details

All comments queries and requests relating to our use of your information are welcomed and should be addressed to:

Genetic Disorders UK
199A Victoria Street
London
SW1E 5NE
Tel: 020 7199 3300
Email: hello@geneticdisordersuk.org

This privacy policy is governed by the laws of England.
The data controller of your data under the Data Protection Act 1998 is Genetic Disorders UK.

Information on the Data Protection Act 1998 is also available on the Information Commissioner’s website at http://www.ico.gov.uk/

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