Newly diagnosed

This site is written by people like you, parents and carers of children who have genetic disorders. We understand what you’re going through. We have been there, are still there. We are here to help you by sharing what we have learned.

Our aim at Genetic Disorders UK is to create a safe place for you to find answers to the questions piling up in your head. If you would like to suggest any other subjects we should cover or contribute by sharing your experience or information, please contact us.

A to Z of genetics

A to Z of genetics

Some of the terms doctors will use when they talk about genetics are baffling. Here is an A to Z of the most common terms you will hear.

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Managing the news within your family

Managing the news within your family

Julie Johnson (RN; SN Cert; HE Cert; Dip Ed Studies; Substance Use & Misuse Cert; Adolescent & Child Counselling; Systemic Counsellor, Human Givens Psychotherapist) is a child and adolescent and family counsellor and parent coach.

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