UK Champion of Hope Awards

The UK Champion of Hope awards celebrate and encourage those individuals who have made, or have the potential to make, an outstanding contribution to the UK genetic disorders community.

David Barlow</br>
Genetic Disorders UK</br>
commitment to the UK genetic disorders community

2018
David Barlow
Genetic Disorders UK

FOR commitment to the UK genetic disorders community

Nicole Boice</br>
Global Genes</br>
international commitment to the UK genetic disorders community

2017
Nicole Boice
Global Genes

FOR international commitment to the UK genetic disorders community

Karen Butcher</br>
Charcot Marie Tooth Disease UK</br>
Lifetime dedication to the UK genetic disorder community

2017
Karen Butcher
Charcot Marie Tooth Disease UK

FOR lifetime dedication to the UK genetic disorders community

Sarah Clark</br>
Cleidocranial Family Support Group UK</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Sarah Clark
Cleidocranial Family Support Group UK

FOR the courage to start a new organisation within the UK genetic disorders community

Libby Clegg</br>
Inspirational achievement within the UK genetic disorders community

2017
Libby Clegg
elizabethclegg.co.uk

FOR inspirational achievement within the UK genetic disorders community

Geoff Creamer</br>
CGD Society</br>
commitment to the UK genetic disorders community

2018
Geoff Creamer
CGD Society

FOR commitment to the UK genetic disorders community

Stephen D’Allenger-Bradshaw</br>
Wolf Hirschhorn Syndrome Trust</br>
Lifetime dedication to the UK genetic disorders community

2018
Stephen D’Allenger-Bradshaw
Wolf Hirschhorn Syndrome Trust

FOR lifetime dedication to the UK genetic disorders community

Howard Don</br>
The Haemochromatosis Society</br>
Lifetime dedication to the UK genetic disorder community

2018
Howard Don
The Haemochromatosis Society

FOR lifetime dedication to the UK genetic disorders community

Alan Finglas</br>
MSD Action Foundation</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Alan Finglas
MSD Action Foundation

FOR the courage to start a new organisation within the UK genetic disorders community

Oliver Gardiner</br>
XLH UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Oliver Gardiner
XLH UK

FOR the courage to start a new organisation within the UK genetic disorders community

Andrew Gibson</br>
Krabbe UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Andrew Gibson
Krabbe UK

FOR the courage to start a new organisation within the UK genetic disorders community

Claire Hennessey</br>
Max Appeal</br>
Lifetime dedication to the UK genetic disorder community

2017
Claire Hennessey
Max Appeal

FOR lifetime dedication to the UK genetic disorders community

Carlos Heras-Palou</br>
TTR Amyloidosis Patient Association UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Carlos Heras-Palou
TTR Amyloidosis Patient Association UK

FOR the courage to start a new organisation within the UK genetic disorders community

Wendy Horrobin</br>
Norrie Disease Association UK</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Wendy Horrobin
Norrie Disease Association UK

FOR the courage to start a new organisation within the UK genetic disorders community.

Wendy has a son affected by Norrie disease and is in the process of establishing the Norrie Disease Foundation to promote vital new research and to offer support to families by strengthening the Norrie network - sharing resources, contacts and connecting families.

Kerry Hughes</br>
Zellweger UK</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Kerry Hughes
Zellweger UK

FOR the courage to start a new organisation within the UK genetic disorders community

Chloe Joyner</br>
Usher Kids UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Chloe Joyner
Usher Kids UK

FOR the courage to start a new organisation within the UK genetic disorders community

Amarpreet Kaur</br>
MDJunction Klippel Feil Syndrome UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Amarpreet Kaur
MDJunction Klippel Feil Syndrome UK

FOR the courage to start a new organisation within the UK genetic disorders community

Jono Lancaster</br>
Love Me, Love My Face Foundation</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Jono Lancaster
Love Me, Love My Face Foundation

FOR the courage to start a new organisation within the UK genetic disorders community

Vanessa Martin</br>
Childhood Tumour Trust</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Vanessa Martin
Childhood Tumour Trust

FOR the courage to start a new organisation within the UK genetic disorders community

Michael Mason</br>
FAP Gene Support Group</br>
Lifetime dedication to the UK genetic disorders community

2018
Michael Mason
FAP Gene Support Group

FOR lifetime dedication to the UK genetic disorders community

Meryl Ockenden</br>
Soft Bones UK</br>
Courage to start a new organisation within the UK genetic disorders community

2017
Meryl Ockenden
Soft Bones UK

FOR the courage to start a new organisation within the UK genetic disorders community

Andrew Orchard</br>
Chronic Granulomatous Disorder Society</br>
Lifetime dedication to the UK genetic disorder community

2017
Andrew Orchard
Chronic Granulomatous Disorder Society

FOR lifetime dedication to the UK genetic disorders community

Bill Owen</br>
Niemann-Pick UK</br>
Lifetime dedication to the UK genetic disorder community

2017
Bill Owen
Niemann-Pick UK

FOR lifetime dedication to the UK genetic disorders community

Kay Parkinson</br>
Alstrom Syndrome Europe</br>
Lifetime dedication to the UK genetic disorder community

2017
Kay Parkinson
Alstrom Syndrome Europe

FOR lifetime dedication to the UK genetic disorders community.

Kay founded Alstrom Syndrome UK in 1998 after her son and daughter were both diagnosed with Alstrom syndrome. In 2013, she launched Alstrom Europe and has been instrumental in securing a trial for a new drug to treat fibrosis.

Diana Perry</br>
Ectodermal Dysplasia Society</br>
Lifetime dedication to the UK genetic disorder community

2017
Diana Perry
Ectodermal Dysplasia Society

FOR lifetime dedication to the UK genetic disorders community

Alex Potter</br>
Rare Genetic Obesity UK</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Alex Potter
Rare Genetic Obesity UK

FOR the courage to start a new organisation within the UK genetic disorders community

Christine Rose</br>
SOFT UK</br>
Lifetime dedication to the UK genetic disorder community

2017
Christine Rose
SOFT UK

FOR lifetime dedication to the UK genetic disorders community

Beverly Searle</br>
Unique</br>
Lifetime dedication to the UK genetic disorder community

2017
Beverly Searle
Unique

FOR lifetime dedication to the UK genetic disorders community

Maria Walters</br>
SATB2 Gene Foundation</br>
Courage to start a new organisation within the UK genetic disorders community

2018
Maria Walters
SATB2 Gene Foundation

FOR the courage to start a new organisation within the UK genetic disorders community

Sandra Webb</br>
XP Support Group</br>
Lifetime dedication to the UK genetic disorders community

2018
Sandra Webb
XP Support Group

FOR lifetime dedication to the UK genetic disorders community