2017 UK Champion of Hope Awards

In 2017, Genetic Disorders UK launched the UK Champion of Hope awards to celebrate and encourage those individuals who have made, or have the potential to make, an outstanding contribution to the UK genetic disorders community.

Very many congratulations to our inaugural award winners below.

Nicole Boice</br>
Global Genes</br>
international commitment to the UK genetic disorders community

Nicole Boice
Global Genes

FOR international commitment to the UK genetic disorders community

Karen Butcher</br>
Charcot Marie Tooth Disease UK</br>
Lifetime dedication to the UK genetic disorder community

Karen Butcher
Charcot Marie Tooth Disease UK

FOR lifetime dedication to the UK genetic disorders community

Sarah Clark</br>
Cleidocranial Family Support Group UK</br>
Courage to start a new organisation within the UK genetic disorders community

Sarah Clark
Cleidocranial Family Support Group UK

FOR the courage to start a new organisation within the UK genetic disorders community

Libby Clegg</br>
Inspirational achievement within the UK genetic disorders community

Libby Clegg
elizabethclegg.co.uk

FOR inspirational achievement within the UK genetic disorders community

Alan Finglas</br>
MSD Action Foundation</br>
Courage to start a new organisation within the UK genetic disorders community

Alan Finglas
MSD Action Foundation

FOR the courage to start a new organisation within the UK genetic disorders community

Claire Hennessey</br>
Max Appeal</br>
Lifetime dedication to the UK genetic disorder community

Claire Hennessey
Max Appeal

FOR lifetime dedication to the UK genetic disorders community

Wendy Horrobin</br>
Norrie Disease Association UK</br>
Courage to start a new organisation within the UK genetic disorders community

Wendy Horrobin
Norrie Disease Association UK

FOR the courage to start a new organisation within the UK genetic disorders community.

Wendy has a son affected by Norrie disease and is in the process of establishing the Norrie Disease Foundation to promote vital new research and to offer support to families by strengthening the Norrie network - sharing resources, contacts and connecting families.

Kerry Hughes</br>
Zellweger UK</br>
Courage to start a new organisation within the UK genetic disorders community

Kerry Hughes
Zellweger UK

FOR the courage to start a new organisation within the UK genetic disorders community

Jono Lancaster</br>
Love Me, Love My Face Foundation</br>
Courage to start a new organisation within the UK genetic disorders community

Jono Lancaster
Love Me, Love My Face Foundation

FOR the courage to start a new organisation within the UK genetic disorders community

Meryl Ockenden</br>
Soft Bones UK</br>
Courage to start a new organisation within the UK genetic disorders community

Meryl Ockenden
Soft Bones UK

FOR the courage to start a new organisation within the UK genetic disorders community

Andrew Orchard</br>
Chronic Granulomatous Disorder Society</br>
Lifetime dedication to the UK genetic disorder community

Andrew Orchard
Chronic Granulomatous Disorder Society

FOR lifetime dedication to the UK genetic disorders community

Bill Owen</br>
Niemann-Pick UK</br>
Lifetime dedication to the UK genetic disorder community

Bill Owen
Niemann-Pick UK

FOR lifetime dedication to the UK genetic disorders community

Kay Parkinson</br>
Alstrom Syndrome Europe</br>
Lifetime dedication to the UK genetic disorder community

Kay Parkinson
Alstrom Syndrome Europe

FOR lifetime dedication to the UK genetic disorders community.

Kay founded Alstrom Syndrome UK in 1998 after her son and daughter were both diagnosed with Alstrom syndrome. In 2013, she launched Alstrom Europe and has been instrumental in securing a trial for a new drug to treat fibrosis.

Diana Perry</br>
Ectodermal Dysplasia Society</br>
Lifetime dedication to the UK genetic disorder community

Diana Perry
Ectodermal Dysplasia Society

FOR lifetime dedication to the UK genetic disorders community

Christine Rose</br>
SOFT UK</br>
Lifetime dedication to the UK genetic disorder community

Christine Rose
SOFT UK

FOR lifetime dedication to the UK genetic disorders community

Beverly Searle</br>
Unique</br>
Lifetime dedication to the UK genetic disorder community

Beverly Searle
Unique

FOR lifetime dedication to the UK genetic disorders community