For charities and patient groups

Leadership Symposium

Leadership Symposium

In March each year, Genetic Disorders UK in partnership with Global Genes organises the UK Genetic Disorders Leadership Symposium. This two-day event in London offers the leaders of charities and patient groups the opportunity to hear from experts in a wide range of fields related to genetics and the care of individuals and families with genetic disorders.

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Grant programme

Grant programme

We provide invaluable grants to disorder-specific charities to fund inspiring projects and support services. Our grants bring together families affected by very rare disorders so that they can create their own support networks; we provide specialist equipment; we offer respite breaks to children who are carers for parents of a condition they might inherit; and we pay for specialist nurses and key workers.

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Genetic Disorders Charities & Patient Group Network

Genetic Disorders Charities & Patient Group Network

We are in the process of establishing a Genetic Disorders Charities & Patient Group Network. If you would like to be informed about the development of this network, please become a member.

Genetic Disorders Charities & Patient Group Network