For charities and patient groups

Leadership Symposium

Leadership Symposium

In March each year, Genetic Disorders UK in partnership with Global Genes organises the UK Genetic Disorders Leadership Symposium. This two-day event in London offers the leaders of charities and patient groups the opportunity to hear from experts in a wide range of fields related to genetics and the care of individuals and families with genetic disorders.

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Grant programme

Grant programme

We provide invaluable grants to disorder-specific charities to fund inspiring projects and support services. Our grants bring together families affected by very rare disorders so that they can create their own support networks; we provide specialist equipment; we offer respite breaks to children who are carers for parents of a condition they might inherit; and we pay for specialist nurses and key workers.

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Genetic Disorders Charities & Patient Group Network

Genetic Disorders Charities & Patient Group Network

We are in the process of establishing a Genetic Disorders Charities & Patient Group Network. If you would like to be informed about the development of this network, please become a member.

Genetic Disorders Charities & Patient Group Network
AMRC Guide to Government

AMRC Guide to Government

This guide provides an overview of the Secretaries of State, Ministers and Special Advisers that AMRC have identified as holding responsibilities for areas that may be of interest for medical research charities.

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