For affected adults

GDUK is an exciting new charity providing information for adults with genetic disorders and families with affected children.

We are working hard to complete this section. If you would like to know when it is online please become a member of GDUK here.

If you are an adult affected by a genetic disorder and you would like to write about your experiences, please contact us.

Specialist genetic centres

Specialist genetic centres

The United Kingdom and Ireland have a number of specialist genetic centres. Wherever you live you'll find a centre (or a satellite clinic) to help you.

Whether you're looking for help with diagnosis, condition management or anything else to do with genetics, here is the information to help you get through to the right people.

Find out more

Research participation

This section contains information on the different research projects that are currently recruiting participants.

Read more