Support

Genetic Disorders UK supports various initiatives that aim to better the lives of those with genetic disorders in the UK.


Rare Disease UK

Rare Disease UK

Rare Disease UK is the national alliance for people with rare diseases and all who support them.

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Global Genes

Global Genes

Global Genes is a leading rare disease advocacy organization with global reach to the worldwide rare community of patients, caregivers, advocates and clinical partners.

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Why not People

Why not People

A members club established exclusively for people with disabilities hosting a variety of different events.

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Genetic Alliance UK

Genetic Alliance UK

Genetic Alliance UK are an alliance of over 180 patient organisations working to improve the lives of patients and families affected by all types of genetic conditions.

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Ethical Medicines Industry Group

Ethical Medicines Industry Group

EMIG is the UK research-based trade association that represents the interests of small to medium-sized Pharmaceutical, Biotech and Medtech companies (SMEs).

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European Patients Forum

European Patients Forum

The European Patients’ Forum (EPF) is an umbrella organisation that works with patients’ groups in public health and health advocacy across Europe. Their vision is that all patients with chronic and/or lifelong conditions in the EU have access to high quality, patient-centred equitable health and social care.

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Association of Medical Research Charities (AMRC)

Association of Medical Research Charities (AMRC)

AMRC are the leading voice of the health and medical research charity sector, supporting charities to deliver high-quality research and champion impact for patient and public benefit.

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Cambridge Rare Disease Network (CRDN)

Cambridge Rare Disease Network (CRDN)

CRDN  is a newly established charity working to build a community of people in Cambridge to address the unmet needs in rare disease research and treatment.

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