Genetic Disorders UK

Genetic disorders affect 1 in 25 children born in the UK.

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There are more than 6,000 recognised genetic conditions.

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Over 30,000 babies are born in the UK each year with a genetic disorder.

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Genetic disorders are the main cause of death for children aged 14 and under in the UK.

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About genetic disorders For parents of affected children For affected adults For support groups & charities

About us

Genetic Disorders UK (GDUK) is a new charity that provides much-needed advice and support for individuals and families affected by genetic disorders.

This site has been compiled by people with personal experience of genetic disorders. We will help you through diagnosis, day-to-day management of the disorder and the impact on your family. Our database will help you find other families in your position and advise how to set up your own support group. You are not alone.

Get involved

If you are a parent or carer or you are affected by a genetic disorder and want to get involved we would love to hear from you.

This site is written by people like you, for people like you and we value your help.

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